From the 23rd of June to the 29th of June, we come together to mark Deafblind Awareness Week. Deafblind Awareness Week is held annually in late June, coinciding with the birthdate of Helen Keller, a trailblazing advocate for individuals with dual sensory loss. During this week, we focus on raising awareness about the challenges faced by the deafblind community, but also reinforce the narrative that those living with dual sensory loss have interests, hobbies, and ambitions similar to those who are not deafblind.
Deafblindness, which is a combination of sight and hearing loss, affects over 450,000 people in the UK and according to Sense International, 0.2% of the world’s population has severe deafblindness and a further 2% of people around the world are living with milder forms of deafblindness. This means approximately 160 million people are affected by deafblindness. Ultimately, it is important to understand deafblindness not only this week, but also the other 51 weeks.
There are various causes of deafblindness, including:
- Genetic conditions- Usher Syndrome and Down Syndrome.
- Prenatal factors: Maternal infections during pregnancy, such as Rubella.
- Medical complications during pregnancy- poor nutrition.
- Premature birth.
- Complications during birth, such as a lack of oxygen.
- Sensory loss because of ageing.
Indeed, the challenges faced can be significant, however, the deafblind community consistently demonstrates determination and adaptability. Deafblind awareness week reminds us to recognise these qualities but also to support the development of inclusivity in society.
Here are some communication tips to ensure meaningful interactions are possible:
- Are you in the correct space? A question you should ask yourself. Often, we are surrounded by background noise which we can blur out, however, this excessive noise can make it harder for people who have sensory loss to communicate. Namely, you must ensure that background noise is at a low, no radios, no tv.
- Speak clearly: Using clear speech is a very effective and easy way of communicating with someone who is deafblind.
- Introduce yourself: It is important to make it clear who you are, as an individual who is deafblind might not recognise your voice as well. Make it clear who you are.
Indeed, Deafblind Awareness Week is not just about understanding, it is also important to act and be proactive. Make sure that while you educate yourself, you also share your knowledge with those around you. It is important to support campaigns and highlight your commitment to making society one that is more accessible.
If you are interested in equipping yourself with the skills needed to effectively communicate with the deafblind community, our deafblind communication courses are designed to provide practical knowledge and communication techniques which can help bridge the gap between individuals with dual sensory loss and the wider community.
During this week, we encourage individuals to educate themselves and celebrate the deafblind community.